A mother experienced every parent’s worst nightmare when a rare condition robbed her teenage son of his sight – and is now fighting for equal access to revolutionary medication. Motorcycle enthusiast Jacob Ely, 19, is now no longer able to ride his bike and also lost his job after suddenly going blind due to Leber’s hereditary optic neuropathy – which could also affect his siblings. But there is ‘light at the end of the tunnel’ for the Long Sutton lad as the Idebenone medication is helping to improve his eyesight. But a postcode lottery means his parents, Kimberley and James, have to pay for i…
