Family whose three-year-old daughter has a one-of-a-kind genetic sequence says to “feel discriminated against” and “let down” by a council as they have waited in priority housing for nearly three years. Callum Pepper and Sian Lawrence are parents to Amelia Pepper, a three-year-old from Newark, who is the only person in the world to be born with her genetic condition, now named — Unbalanced translocation of chromosomes (2p25.3 deletion and 11q13.4-25 duplication). As a result of her condition, Amelia has several complexities, including she needs to be tube-fed as she’s at high risk of breathing…
