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By Luke Gill & Ryan Fahey A young boy suffering with a rare disease that causes complex symptoms has never given up, according to his proud family. Jaxon Crawford, five, is struggling with Kabuki syndrome, a rare congenital disorder only affecting one in every 32,000. The youngster suffers regular seizures and a number of other health issues. In his young life, he’s already had to have teeth removed and is often at the doctors of hospital for check ups. During one recent visit, he had to undergo open-heart surgery to mend a hole in his heart. Speaking to the ECHO, his mum Melissa Clarke said: …

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